Monday, December 2, 2013

More Adventures

After a quiet first couple of months this Fall, the last 6 weeks have been eventful.  Over MEA break, me and the kids went up to the Rainbow System store and checked out their slides.  Dallas and I went down one of them and when we got to the bottom he was sobbing.  He never settled down, so we had to leave and I just assumed he was scared and mad at me for making him go down the slide with me.  When we got home, I noticed he wasn't walking on his left leg.  The next day we headed to the DR and they x-rayed his hips as they seemed to be really sensitive to touch, etc. The x-rayed revealed nothing, so we went on. Two weeks and 2 DR visits later, they decided to x-ray his leg and found 2 fractures in his tibia, one on top and one on the bottom.  Five days later he had it casted!  He adjusted really well after the first couple of days and now walks on it and is getting around great.

Today I got a call from the school that Dallas had thrown up and must have the flu and that I needed to come and pick him up.  I thought this was weird because he had the flu just 2 weeks ago and surely he could not have the flu again.  The school called again and said they no longer believe it's the flu, its seizures.  I was already on my way to get him, but of course this phone call had my heart racing.  I got to the school and they filled me in on what had been happening.  Most of it sounded very familiar as this type of thing has happened since Dallas was 6 months old.  He begins "vomiting" and it completely knocks him out.  His lips discolor, his eyes roll back, he loses all muscle control and is completely limp.  The school also said he had an episode where his hand and eyes were twitching which was just another clue that this was seizures presenting itself in the form of vomiting.  I have been pressing this issue with his DR's for 2 years.  We have followed up with a Gastroentologist to make sure this isn't some stomach issue and we have come up empty.  So today, after 4 hours of vomiting, we were advised to administer his emergency stop seizure medication and sure enough the vomiting stopped immediately.  So the good news is that we know now that this is why he is vomiting, the bad news is that he has had a lot more seizures that we ever thought.  The plan from here is to schedule another EEG and follow-up appointment with his neurologist and then see what the plan is from there.